INTERNATIONAL Angelman Day has been celebrated with fun and adventure on North Stradbroke Island.
Five people living with the rare neurogenetic disorder, which is characterised by things like delayed development and speech problems, came together for a trip to the island on Saturday.
Angelman syndrome affects one in 15,000 people and there are 500 people known to be living with the disorder in Australia.
Redlands has the highest number of Angelman syndrome cases in the country, mainly due to the services and supports available in the city.
Six students with the disorder have attended Redland District Special School.
Angelman day - which is held on February 15 each year - aims to raise awareness, promote research, and remember those who have passed away because of the condition.
Emily Beith, Connor Exner, Jye Swinson, Tex Noakes and Finn Roberts - all of whom range in age from 13 to 23 - visited the beach and enjoyed a barbecue for this year's celebration on North Stradbroke Island.
Angelman Syndrome Association Australia national president Fiona Lawton thanked Daydream Explorers for their services.
"When I first met Mark and the team from Daydream Explorers a year or so ago, I asked him if we could take a whole lot of angels out to the beach for a day," she said.
"It took a bit of organising, but I am thrilled with how the day went."
Staff from Ruby and Ollies All Ability Child Care and Precious Angels also were involved.
Ms Lawton said there were an estimated 1000 Angelman Syndrome cases undiagnosed in Australia.
The aim of International Angelman Day was to raise awareness so the missing angels could be found.
" ... We need to raise awareness to ensure that they are diagnosed correctly to access the standard of care and qualify for trials and treatments," she said.
"Once you have met one individual with Angelman syndrome, it can be quite easy to identify other children and adults.
"We are hoping to reach families that do not have a formal diagnosis or suspect that the diagnosis they have may not be correct."
Clinical trials into Angelman syndrome are underway in the United Kingdom and United States with positive results.
People have recovered from a number of symptoms and children who were previously unable to communicate verbally have developed speech.
Australia will host clinical trials this year.
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